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Connecting for Health has released the Common Framework for Networked Personal Health Information for new Internet services that help consumers track and improve their health. It defines a set of practices that can help protect personal information and enhance consumer participation in online personal health records. Diverse groups including AARP and consumer and privacy organizations, health insurers, health care providers, and technology companies Dossia, Google, Intuit, Microsoft, and WebMD have endorsed the framework.
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EXPLORING NEW PROCESSES TO DEVELOP U.S. ENERGY SECURITY POLICIES
The Markle Foundation, in partnership with the Center for a New American Security (CNAS), has completed a Solarium Project on energy security. The goal of this work was to define the essential components of a comprehensive energy security policy for the United States. Markle and CNAS are now considering whether and how to develop information flow processes and collaborative policy structures that can help inform sound energy policies. These efforts are designed to assist the incoming presidential administration in ensuring that energy and climate change challenges are not overlooked in the design and implementation of new national security initiatives. James B. Steinberg, dean of the Lyndon Baines Johnson School of Public Affairs at the University of Texas at Austin, has joined this collaborative effort. He will be leading a team from LBJ and the Center for International Energy and Environmental Policy at the Jackson School of Geosciences (University of Texas).
Visit the Energy Security Project Page.
Read about the CNAS Solarium II Project.
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Creating a trusted information sharing environment (ISE) as envisaged by the Markle Task Force on National Security in the Information Age requires that users and the public have confidence in the system. To establish and maintain trust, security, privacy and accountability, the ISE should incorporate Immutable Audit Logs (IALS) as part of its robust security and audit features. This paper explores the technical, policy, and security issues surrounding IALs as well as the potential benefits and drawbacks of using immutable audit logs in the ISE. The paper explains how maintaining tamper-resistant logs of user activity on the network increases security, builds trust among users, ensures compliance with relevant policies and guidelines, improves transparency, and provides the ability to conduct oversight by appropriate stakeholders outside of the system.
Download Using Immutable Audit Logs to Increase Security, Trust and, Accountability (PDF, 356K)
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The Markle Foundation Task Force on National Security in the Information Age today released its third report with recommendations on how to reconcile national security needs with civil liberties requirements. The report offers a new "authorized use" standard for government handling of legally collected information that bases authorization to view information on how the information is going to be used, rather than on the nationality of the subject or the location of collection. The report also proposes a new risk management approach to sharing classified information that balances the risk of leaks of classified information with the security risk that can come from failing to share information with those who need it to understand the threats to national security. Further, the report identifies examples of technology that can be used effectively to provide appropriate oversight and accountability.
Download Entire Report (4.8 MB)
Download Visualization (PC, .ZIP, 72.1 MB)
Download Visualization (Macintosh, .ZIP, 50.0 MB)
Read Press Release
Review additional National Security Task Force Reports
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KatrinaHealth.org
The Markle Foundation released Lessons from KatrinaHealth, a report that describes KatrinaHealth and makes recommendations to better prepare the nation to provide secure online access to patient prescription drug records in the event of future disasters. KatrinaHealth is an online service that helped individuals affected by Hurricane Katrina work with their health professionals to gain access to their own electronic prescription medication records. Through KatrinaHealth.org, authorized pharmacists and doctors were able to get records of medications evacuees were using before the storm hit. This information helped healthcare professionals avoid harmful prescription errors and coordinate care. KatrinaHealth.org was awarded the 2006 Pinnacle Award by the American Pharmacists Association Foundation.
Read Press Release
Report: Lessons from KatrinaHealth
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Sign up for the Markle Foundation's Weekly Digest on emerging Information Technology issues.
Among the Highlights of the Weekly Digest for November 14, 2008:
- Obama upgrades to White House 2.0
- Two new California laws add 'teeth' to privacy protection
- The hospital is watching you
- Google uses searches to track flu's spread
- Pakistan sets death penalty for "cyber terrorism"
- The value of personal health records
- Health and the mobile phone
- Unintended adventures in browsing
- Zuckerberg's law of information sharing
- Letter to Obama: Change IT strategy
And much more!
Weekly Digest (PDF, 929k)
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October 23, 2008
The Markle Task Force on National Security continues to assess the government's progress on implementing past recommendations, and will propose additional recommendations to the incoming Presidential administration on how the nation's leadership can continue to transform the ways in which information is shared across all levels of government and with the private sector.
Read a summary of the Task Force's work (PDF, 113K)
September 22, 2008
Connecting for Health issues a policy brief outlining a 21st-Century approach to privacy that will allow Americans to protect and share health information and improve the quality of their care.
Read the policy brief (PDF, 109K).
September 17, 2008
Project HealthDesign hosted New Frontiers in Personal Health Records in Washington, DC. The event showcased next-generation PHR applications and offered panel discussions on ethics, professional practice, public policy, and the direction of future development efforts.
Click here to view Carol Diamond's presentation (PowerPoint Slideshow, 1.8 MB).
August 20, 2008
Carol Diamond, Chair of Connecting for Health, discusses the creation of the Common Framework and its application to networked personal health information services at HIPAA Summit XVI at Harvard University.
Click here to view the presentation (PowerPoint Slideshow, 2.9 MB).
August 19, 2008
In a new Health Affairs article, co-authors Carol Diamond and Clay Shirky caution that focusing solely on narrowly-defined technical standards to transform our health care system limits our ability to unlock the full potential of health IT.
Read the article: Health Information Technology: A Few Years of Magical Thinking?
Read the abstract.
Read the news release (PDF, 36K)
July 30, 2008
Carol Diamond, MD, MPH, presents four critical approaches to analyzing data to determine the most effective health care treatments. Her presentation was part of the Summer 2008 IOM Roundtable on evidence-based medicine.
Click here to view the presentation (PDF, 4.1 MB).
July 23, 2008
Jeffrey H. Smith, a member of the Markle Task Force on National Security, called for renewed leadership in implementing a trusted information-sharing environment during his testimony to the Senate. The hearing was convened by the Senate Committee on Homeland Security and Governmental Affairs.
Click here to read Mr. Smith's testimony (PDF, 129K).
Click here to learn more about the hearing and read other panelists' testimonies.
See more articles, essays, and speeches.
Go to Markle in the News.
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December 5, 2008
The eHealth Initiative will host a conference entitled "Taking the Pulse: A Review of Progress Over the Last Five Years and Key Recommendations for 2009 and Beyond." Connecting for Health’s Carol Diamond will deliver the keynote address.
Learn more about the conference.
Register for the event.
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